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Strength Training vs. Parkinson’s: The Top 2024 Discoveries You Need to Know

4/26/2025

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🧠 Strength in Motion: Top 5 Research Breakthroughs on Strength Training for Parkinson’s Disease in 2024
In 2024, groundbreaking studies have illuminated the pivotal role of strength training in managing Parkinson's disease (PD). These findings underscore how targeted exercise regimens can enhance motor function, cognitive health, and overall quality of life for individuals with PD. Below are the top five research articles from 2024 that delve into these benefits:

1. Maximal Strength Training Enhances Neuromuscular Function
A randomized controlled trial published in PubMed investigated the effects of maximal strength training (MST) on patients with Parkinson's disease. Participants engaged in high-intensity leg and chest presses at approximately 90% of their one-repetition maximum, five times per week for four weeks. The study found significant improvements in muscle strength, rate of force development, and functional performance measures such as stair climbing and the timed up and go test. Additionally, there was an increase in efferent neural drive, suggesting enhanced neuromuscular function. These results advocate for the inclusion of high-intensity strength training as an adjunct therapy in PD treatment. (Maximal strength training in patients with Parkinson's disease: impact on efferent neural drive, force-generating capacity, and functional performance - PubMed)

2. Progressive Resistance Training Shows Promising Results
A systematic review and meta-analysis examined the effectiveness of progressive resistance training (PRT) in individuals with Parkinson's disease. The analysis revealed that PRT led to significant improvements in muscle strength, balance, and motor function. These findings support the implementation of PRT as a beneficial intervention for managing PD symptoms. (Effectiveness of Progressive Resistance Training in Parkinson's Disease: A Systematic Review and Meta-Analysis - PubMed)

3. Rock Steady Boxing Improves Motor and Non-Motor Symptoms
A comprehensive analysis explored the neuropsychological effects of Rock Steady Boxing (RSB) in patients with Parkinson's disease. Over an eight-week period, participants engaged in biweekly RSB sessions, which included activation, core exercises, and cooldown phases. The study observed significant reductions in depressive symptoms, as measured by the Beck Depression Inventory, and improvements in both motor and non-motor symptoms. These findings suggest that RSB can be an effective complementary treatment for PD. (Neuropsychological Effects of Rock Steady Boxing in Patients with Parkinson's Disease: A Comprehensive Analysis)

4. Modified Powerlifting Feasible for Early-Onset Parkinson’s
A study protocol published on medRxiv proposed investigating the feasibility of gym-based modified powerlifting exercises for individuals with early-onset Parkinson's disease. The planned eight-week program aims to assess safety, adherence, and potential benefits in motor disability, quality of life, and psychosocial status. The study hypothesizes that such strength training could improve muscle strength, coordination, and balance, potentially slowing disease progression. (Gym-Based Modified Powerlifting Exercises for People with Early Onset Parkinson’s Disease: Study Protocol | medRxiv)

5. Strength Training Enhances Walking Capacity
A controlled study examined the effects of twelve weeks of strength training in addition to standard care for patients with Parkinson's disease. Participants in the strength training group performed individualized upper and lower limb exercises. The study found significant improvements in peak torque measures, peak work load, and the Six-Minute Walk Distance test, indicating enhanced walking capacity. These results highlight the efficacy of strength training in improving mobility in PD patients. (Effects of twelve weeks of aerobic or strength training in addition to standard care in Parkinson's disease: a controlled study - PubMed)

🧭 Final Thoughts
The 2024 research landscape underscores the transformative potential of strength training in managing Parkinson's disease. From high-intensity resistance exercises to specialized programs like Rock Steady Boxing, these interventions offer promising avenues for improving motor function, mood, and overall quality of life. As always, individuals should consult healthcare professionals before embarking on new exercise regimens. (Rock Steady Boxing Mid Michigan endowed to Greater Midland)

Stay tuned to Nectar of the Neurons for more insights into the latest neuroscience research and wellness strategies.
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Caregivers or superheros?

3/22/2025

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The Unsung Heroes: How Caregivers Are Vital in Parkinson’s Care & Essential Resources to Support Them

Introduction

Caring for someone with Parkinson’s disease (PD) is an incredible act of love, dedication, and resilience. Whether it’s a spouse, family member, friend, or professional caregiver, these individuals provide the daily support and encouragement that people with Parkinson’s need to maintain their quality of life. However, caregiving can also be physically, emotionally, and mentally exhausting. Without adequate support, caregivers may experience burnout, stress, and health issues of their own.

This guide aims to acknowledge the vital role caregivers play in Parkinson's care and provide them with an extensive list of resources to assist them in their journey.
The Role of a Caregiver in Parkinson’s Disease

As Parkinson’s progresses, caregiving responsibilities evolve. Early on, caregivers may provide minimal assistance, but as the disease advances, they may become responsible for mobility support, medication management, emotional well-being, and daily tasks.

Some of the key roles of a Parkinson’s caregiver include:
  • Medication Management: Ensuring the individual takes their medications on time, as missed doses can lead to symptom fluctuations.
  • Mobility Assistance: Helping with balance, walking, and fall prevention.
  • Emotional Support: Encouraging mental well-being through companionship and understanding.
  • Daily Living Support: Assisting with eating, dressing, and hygiene.
  • Advocacy: Navigating medical appointments and advocating for the best possible care.
Given these responsibilities, caregivers need resources to support both the person with Parkinson’s and their own well-being.

Essential Resources for Caregivers
1. Educational Resources
Knowledge is power, and understanding Parkinson’s can help caregivers provide better support. The following organizations offer free educational materials, webinars, and training programs:
  • Parkinson’s Foundation (www.parkinson.org) - Offers comprehensive resources, including a caregiver guide, webinars, and a helpline.
  • Michael J. Fox Foundation (www.michaeljfox.org) - Provides cutting-edge research updates and a Parkinson’s caregiver toolkit.
  • Davis Phinney Foundation (www.davisphinneyfoundation.org) - Focuses on living well with Parkinson’s, including caregiver resources and support programs.
  • American Parkinson Disease Association (APDA) (www.apdaparkinson.org) - Offers support groups, educational materials, and financial aid options.
  • Caregiver Action Network (www.caregiveraction.org) - Provides general caregiving advice, including for those caring for someone with Parkinson's.
2. Support Groups for Caregivers
Caregivers benefit greatly from connecting with others who understand their struggles and can provide advice, support, and encouragement.
  • Parkinson’s Foundation Care Partner Program (www.parkinson.org/Living-with-Parkinsons/Resources-and-Support/For-Caregivers)
  • Davis Phinney Foundation Support Groups (www.davisphinneyfoundation.org/support)
  • WellMed Charitable Foundation Caregiver Teleconnection (www.caregiverteleconnection.org) - Provides free telephone-based support groups.
  • Facebook Caregiver Support Groups:
    • Parkinson’s Caregivers Support Group (www.facebook.com/groups/ParkinsonsCaregivers)
    • Parkinson’s Spouses Support Group (www.facebook.com/groups/PDspouses)
3. Respite Care and Professional Assistance
Caring for someone with Parkinson’s is demanding, and caregivers need breaks. Respite care services allow caregivers to rest while ensuring their loved ones receive professional care.
  • National Respite Network (www.archrespite.org) - Helps locate respite care services across the U.S.
  • Eldercare Locator (www.eldercare.acl.gov) - Connects caregivers with local eldercare services.
  • Home Instead Senior Care (www.homeinstead.com) - Offers in-home care tailored to individuals with Parkinson's.
  • Alzheimer’s Association Respite Services (www.alz.org/help-support/caregiving/care-options/respite-care) - Although focused on Alzheimer’s, many services apply to Parkinson’s caregivers as well.
4. Mental and Emotional Well-Being
Caregivers must take care of their own mental health to avoid burnout. These resources provide stress relief, counseling, and mindfulness support.
  • National Alliance on Mental Illness (NAMI) (www.nami.org) - Offers mental health resources and caregiver support programs.
  • Family Caregiver Alliance (www.caregiver.org) - Provides self-care tools, workshops, and online caregiver retreats.
  • Headspace (www.headspace.com) - Mindfulness and meditation app with guided sessions for stress relief.
  • Talkspace (www.talkspace.com) - Online therapy with licensed professionals.
5. Practical Tips for Everyday Care
Caregivers can make daily life easier with the right tools and strategies.
  • Fall Prevention and Mobility Assistance:
    • U-Step Walker (www.ustep.com) - Designed specifically for Parkinson’s patients to prevent falls.
    • Silverts Adaptive Clothing (www.silverts.com) - Clothing designed for easy dressing with limited mobility.
  • Medication Management:
    • Medisafe App (www.medisafe.com) - A medication reminder app.
    • PillPack by Amazon Pharmacy (www.pillpack.com) - Pre-sorted medication delivery.
  • Home Modifications:
    • National Association of Home Builders (NAHB) Aging-in-Place Directory (www.nahb.org) - Find contractors specializing in accessibility modifications.
Conclusion
Caregivers play an essential role in supporting individuals with Parkinson’s, but they should not have to do it alone. By utilizing these resources, caregivers can find education, emotional support, practical assistance, and much-needed respite. If you know a caregiver, share this post with them—they deserve all the help and recognition we can give.
To all Parkinson’s caregivers: thank you for your compassion, patience, and strength. You are truly the unsung heroes of the Parkinson’s community.




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Time Shirt

Proceeds from this shirt will go to caregiver organizations.
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How to Reach 100: 10 Essential Tips

3/8/2025

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How to Live to 100: 10 Habits for a Longer, Healthier Life

Who wouldn’t want to live a long, healthy life? While there’s no magic formula for reaching 100, there are many habits that can help you maximize your chances of longevity while maintaining a high quality of life. From nourishing your body with the right foods to staying mentally sharp, here are 10 essential tips for living to 100.

1. Eat a Balanced, Nutritious Diet

A healthy diet is the foundation of good health and longevity. Focus on whole foods that are nutrient-dense. This includes a variety of fruits, vegetables, whole grains, and lean proteins such as fish, legumes, and poultry. A plant-based diet, like the one recommended by
the Mediterranean Diet, is linked to a longer lifespan and lower rates of heart disease. Avoid processed foods, refined sugars, and unhealthy fats that can contribute to obesity, heart disease, and diabetes.
Portion control is also key. Even healthy foods can lead to weight gain if consumed in large quantities. Eating in moderation helps maintain a healthy weight, which reduces the risk of chronic illnesses.
Resources:
Mayo Clinic - Mediterranean Diet, Cleveland Clinic, Johns Hopkins

2. Exercise Regularly

Staying active is one of the best ways to maintain health as you age. Aim for at least 150 minutes of moderate exercise or 75 minutes of vigorous exercise each week, in addition to strength training three times per week. Activities like walking, swimming, and cycling keep your heart healthy, while resistance training helps build and maintain muscle mass, which is crucial as you age.
Incorporating heavy lifting and strength training, can reduce the risk of falls and improve mobility. Speak with your physical therapist about how to do this safely throughout a lifetime.
Resources:  Tufts University, Johns Hopkins,
NIH


3. Stay Mentally Engaged

Your brain needs as much care as your body. To keep your mind sharp, engage in activities that challenge your brain, like reading, puzzles, and learning new skills. Platforms like Lumosity offer brain games designed to improve memory and cognitive function.
Maintaining social connections is equally important for mental well-being. Strong relationships help reduce stress and boost your emotional resilience. Participate in community activities, stay in touch with friends, and nurture your family bonds. If you're looking for tips on how to stay socially engaged, check out Psychology Today’s advice on the importance of social support.


4. Prioritize Sleep

Sleep is crucial for physical and mental restoration. Adults should aim for 7-9 hours of quality sleep each night. Poor sleep has been linked to various health issues, including heart disease and cognitive decline. The Sleep Foundation offers tips on improving your sleep quality and setting a bedtime routine that promotes restful sleep.
Additionally, good sleep hygiene is essential: keep your room cool, dark, and quiet, and avoid screens before bed to help regulate your circadian rhythm.
Resources: 
NIH

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5. Maintain Healthy Relationships

Longevity is often about more than just physical health—it’s also about having strong social ties. Studies have shown that people with close, supportive relationships tend to live longer, healthier lives. Whether it’s spending time with family, participating in local groups, or simply catching up with friends, maintaining social connections is key to mental and emotional well-being.
For ideas on strengthening your social bonds, check out this guide to healthy relationships from HelpGuide.


6. Don't Smoke and Limit Alcohol

Smoking is one of the leading causes of preventable diseases and death. If you smoke, quitting is the best thing you can do for your health. The American Cancer Society provides resources to help you quit.
Moderate alcohol consumption is generally safe for most people, but excessive drinking can lead to liver disease, high blood pressure, and various types of cancer. The CDC recommends that women limit alcohol intake to one drink per day, and men to two drinks per day.


7. Stay Positive and Have a Purpose

People who maintain a positive mindset tend to have better health outcomes and a longer life. Optimism helps manage stress, reduces inflammation, and boosts emotional well-being. Try incorporating daily practices of gratitude, such as writing down things you're thankful for each day.
Having a sense of purpose is equally important. Whether through work, hobbies, or volunteering, people with a clear sense of purpose live longer and experience better mental health.
TED offers a wealth of motivational talks that can help you cultivate a sense of purpose and positivity in life.


8. Get Regular Check-ups and Preventive Care

Preventive care is essential for detecting health issues before they become serious. Regular doctor visits, screenings for heart disease, cancer, and diabetes, and maintaining a vaccination schedule are all crucial for long-term health. The American Heart Association and CDC provide guidelines on the important screenings and check-ups for people of different ages.
Managing chronic conditions, such as hypertension or diabetes, through proper medication and lifestyle changes is essential to reduce the risk of complications.


9. Be Adaptable and Resilient

Resilience—the ability to bounce back from setbacks—is a key trait in people who live long, fulfilling lives. Life can be unpredictable, but those who are adaptable and open to change tend to manage stress better and stay mentally healthier. For tips on building resilience, check out Psychology Today’s guide.
Gratitude also plays a role in resilience. A gratitude practice helps you stay focused on the positive aspects of life, even when things get tough. You can start by keeping a gratitude journal or simply reflecting on what you are thankful for each day.


10. Learn from "Blue Zones"

Blue Zones are regions where people live significantly longer lives. These areas include places like Okinawa, Japan, Sardinia, Italy, and Ikaria, Greece. Residents in these areas share common habits that promote longevity, such as plant-based diets, daily physical activity, and strong social networks. Learn more about the secrets of these longevity hotspots in National Geographic’s Blue Zones project.


Final Thoughts

Living to 100 isn’t just about counting the years—it’s about making each one count. By adopting simple yet powerful habits like staying active, nurturing relationships, and prioritizing your mental and physical health, you can create a life full of purpose, joy, and vitality. The road to longevity is about more than just a number; it's about embracing a mindset that celebrates living well, staying engaged, and taking care of your body and mind.
So, why wait? Start today! Whether it’s adding a few more steps to your daily routine, picking up a new hobby, or spending more quality time with loved ones, every small change can help you live not just longer, but better.
What habits have you found that help you feel your best? Or is there something new you’re excited to try? I’d love to hear about your journey to living a longer, healthier life in the comments below. Let’s inspire each other to make the most of every day!

By incorporating these practices into your daily routine, you’ll not only increase your chances of living to 100 but also improve your overall quality of life. Here's to living longer and better!


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How Moodistory can change your outlook

2/21/2025

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Living with Parkinson's Disease (PD) presents unique challenges, including managing both motor and non-motor symptoms such as mood fluctuations, anxiety, and depression. Monitoring these emotional changes is crucial, as they significantly impact overall well-being and quality of life. Moodistory, a user-friendly mood-tracking app, offers valuable tools tailored to assist individuals with Parkinson's in navigating their emotional health effectively.

Understanding Moodistory
Moodistory is designed to facilitate quick and effortless mood tracking. Users can create journal entries in less than five seconds without typing, simply by selecting their current mood and associated activities. The app provides over 180 events and activities to choose from, allowing for detailed and personalized entries. Additionally, users can add photos, notes, and locations to enrich their diary, creating a comprehensive record of their daily experiences.  Check out their website here:  moodistory.com

Benefits for Individuals with Parkinson's Disease

Identifying Mood Patterns and Triggers

Moodistory's integrated mood calendar, also known as the "Year in Pixels" view, enables users to visualize their mood patterns over time. This feature helps in identifying trends and potential triggers for mood fluctuations, empowering individuals to make informed decisions about their daily activities and routines.

Enhancing Communication with Healthcare Providers

Accurate tracking of mood changes is essential for effective communication with healthcare professionals. Moodistory allows users to export their entries into a beautifully designed PDF, which can be shared with medical teams to provide insights into the user's emotional state. This facilitates personalized treatment plans and adjustments to care strategies.

Privacy and Data Security

Understanding the sensitivity of personal health data, Moodistory prioritizes user privacy. All data is stored exclusively on the user's device, ensuring complete control over personal information. The app also offers security features such as Face ID, Touch ID, or passcode protection to safeguard entries from unauthorized access.

Customization and Accessibility

Moodistory offers a high degree of customization, allowing users to tailor the app to their preferences. This includes customizable color themes, mood scales ranging from a 2-point to an 11-point scale, and personalized event icons. Such flexibility ensures that the app meets the unique needs of each individual, making it a valuable tool for those managing Parkinson's Disease.

Complementary Tools
While Moodistory focuses on mood tracking, individuals with Parkinson's may benefit from additional apps designed to address other aspects of the condition:
  • APDA Symptom Tracker App: This app helps users capture details of their Parkinson's symptoms, including motor and non-motor aspects, and includes features like a medication tracker and notes section.
apdaparkinson.org
  • StrivePD: Utilizing an iPhone and Apple Watch, StrivePD assists users in tracking their Parkinson's experience, focusing on motor symptoms such as tremors and dyskinesia.
davisphinneyfoundation.org

Incorporating Moodistory into daily routines can provide individuals with Parkinson's Disease a practical and efficient means to monitor and manage their emotional health, leading to improved quality of life and more personalized care.
 
Ready to download the app?
App Store: https://apps.apple.com/app/id1335347860
Play Store: https://apps.apple.com/app/id1335347860

Sneak Peak


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Strategies you need to know for improving your mental health with Parkinson's disease

2/15/2025

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The Crucial Role of Mental Wellness in Parkinson's Disease: Strategies for a Stronger Mind

Understanding Mental Health in Parkinson's Disease
Parkinson’s disease (PD) is widely recognized for its impact on movement, but its effects on mental health are just as profound. Many individuals with PD experience depression, anxiety, apathy, and cognitive challenges—issues that can be just as debilitating as physical symptoms.
Addressing mental wellness in Parkinson’s disease is not just about improving mood; it directly affects overall quality of life, physical health, and even disease progression. Research suggests that a proactive approach to mental health can improve motor function, cognitive abilities, and emotional resilience, making it an essential aspect of PD care.
Why Mental Health Matters in Parkinson’s Disease
  1. Depression and Anxiety are Common: Studies show that more than 50% of people with PD experience depression, and anxiety is also highly prevalent. These conditions are not just reactions to the disease but can be caused by PD-related changes in brain chemistry. (Marsh, 2013)
  2. Mental Health Affects Physical Symptoms: Stress, anxiety, and depression can exacerbate tremors, stiffness, and fatigue, creating a cycle where mental health issues worsen physical symptoms and vice versa. (Pontone et al., 2009)
  3. Cognitive Decline and Apathy: Some individuals with PD experience cognitive changes, including memory problems, difficulty concentrating, and apathy. These can reduce motivation to engage in beneficial activities like exercise, socializing, and seeking treatment. (Aarsland et al., 2009)
  4. Impact on Care Partners and Families: Poor mental health not only affects the individual with PD but also places strain on family members and caregivers, leading to caregiver burnout and decreased quality of life for everyone involved. (Schrag et al., 2006)
Accessing Mental Health Support for Parkinson’s Disease
Fortunately, mental health support for people with PD is widely available. Here are some key resources (hyperlinks to their sites are in RED):
  • Parkinson’s Foundation: Offers educational resources, helplines, and strategies to manage emotional and mental health challenges.
  • American Parkinson Disease Association (APDA): Provides support groups, online education, and mental health resources.
  • Michael J. Fox Foundation: Features information for newly diagnosed individuals, including ways to support mental well-being.

  • Local Support Groups: Many organizations and hospitals offer Parkinson’s-specific support groups, providing emotional support and shared experiences.  The hyperlink (in RED) will take you to the Parkinson's Foundation's support group search.
  • Professional Counseling and Therapy: Seeking help from a psychologist or psychiatrist who understands PD can be transformative. Therapies like cognitive-behavioral therapy (CBT) can help manage depression and anxiety effectively.
Building Strong Mental Wellness Practices
While professional support is essential, daily habits and lifestyle choices can also significantly impact mental well-being. Here are some evidence-based strategies:
1. Exercise Regularly
  • Engaging in physical activity releases endorphins, which boost mood and reduce stress. (Goodwin et al., 2008)
  • Exercises like walking, yoga, and tai chi improve balance and mental focus while reducing anxiety and depression.
  • Studies suggest that exercise can slow the progression of PD symptoms and improve brain health. (Speelman et al., 2011)
2. Prioritize a Healthy Diet
  • A Mediterranean-style diet rich in fruits, vegetables, whole grains, and healthy fats supports brain health. (Boulos et al., 2019)
  • Omega-3 fatty acids, found in fish and flaxseeds, may have neuroprotective effects.
  • Staying hydrated and reducing processed foods can help with energy levels and mental clarity.
3. Practice Mindfulness and Meditation
  • Mindfulness techniques reduce stress and help manage the emotional challenges of PD. (Pickut et al., 2015)
  • Meditation and deep breathing exercises can improve focus, relaxation, and emotional resilience.
  • Apps like Headspace and Calm offer guided meditation sessions tailored for stress management.
4. Stay Socially Connected
  • Isolation and loneliness are common in Parkinson’s but can significantly impact mental health.
  • Staying in touch with friends, joining support groups, and participating in community events can boost emotional well-being. (Duncan et al., 2014)
  • Virtual support groups and online communities can also provide connections when in-person interaction is difficult.
5. Seek Professional Counseling or Therapy
  • Therapists specializing in chronic illnesses can provide tools to cope with anxiety, depression, and apathy.
  • Cognitive-behavioral therapy (CBT) is an evidence-based treatment for depression and anxiety in PD. (Dobkin et al., 2011)
  • Support from a mental health professional can also help family members navigate the emotional challenges of caregiving.
Addressing Mental Health Challenges in Parkinson’s Disease
It’s important to recognize the signs of mental health struggles and seek help early. Common symptoms to watch for include:
  • Persistent sadness or loss of interest in activities
  • Increased anxiety, worry, or panic attacks
  • Social withdrawal or lack of motivation
  • Changes in sleep patterns, energy levels, or appetite
  • Feelings of hopelessness or helplessness
If you or a loved one is experiencing these symptoms, don’t hesitate to reach out for help. Parkinson’s specialists, primary care doctors, and mental health professionals can work together to develop a comprehensive treatment plan.

Watch and Learn: Mental Health and Parkinson’s
For a deeper understanding of mental health challenges in Parkinson’s disease and practical strategies for management, check out this informative video:
Dr. Gilbert Hosts: Treating the Mental Health Challenges of Parkinson's Disease

A Holistic Approach to Parkinson’s Wellness
Mental wellness is an essential component of managing Parkinson’s disease. By integrating mental health strategies into daily life—through exercise, diet, mindfulness, social connections, and professional support—individuals with PD can improve their quality of life and overall well-being.

Remember, you’re not alone. Support is available, and taking proactive steps toward mental health can make a significant difference in living well with Parkinson’s.
For more resources and ongoing support, visit Nectar of the Neurons—your go-to platform for health, wellness, and Parkinson’s resources.

📌 Have you found strategies that help with mental wellness in Parkinson’s? Share your thoughts in the comments below! 📌 Follow us on Instagram and Facebook for daily inspiration and expert advice!


Cyclic Sighing..... Try it!

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Power over Parkinson's

2/7/2025

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Empowering Lives with Power Over Parkinson’s Disease: Your Guide to Support and Engagement

Living with Parkinson’s disease can be a journey filled with both challenges and triumphs. Thankfully, organizations like Power Over Parkinson’s Disease (Power Over PD) are leading the way in empowering individuals and their families to thrive despite the condition. In this post, we’ll explore who they are, the impactful services they offer, and how you can get involved to support their mission.

Who Is Power Over PD?
Power Over PD is a dedicated organization committed to improving the lives of people living with Parkinson’s disease. They provide education, resources, and support programs to help individuals maintain their independence and quality of life. With a mission grounded in empowerment, their team of experts collaborates with individuals and families to manage symptoms and navigate the complexities of the disease.

Services They Offer
Power Over PD provides a wide range of services designed to address the unique needs of the Parkinson’s community:
  • Education & Resources: Comprehensive materials on Parkinson’s disease, symptom management, and treatment options.
  • Support Groups: Community connections that foster understanding, encouragement, and shared experiences.
  • Exercise Programs: Tailored fitness classes that help improve mobility, strength, and balance.
  • Wellness Workshops: Holistic programs that address mental health, nutrition, and lifestyle adjustments.
  • Caregiver Support: Guidance and resources to help caregivers manage their responsibilities and well-being.
These programs are thoughtfully curated to help individuals take charge of their journey and build a sense of resilience.

Why Support Power Over PD?
Your contributions enable Power Over PD to expand its services and reach more individuals affected by Parkinson’s disease. By supporting their mission, you help provide critical resources and foster an environment where people can live full, meaningful lives despite their diagnosis.

How to Donate
If you’re inspired to make a difference, donating to Power Over PD is simple and impactful. Here’s how you can contribute:
  • Visit their Donate Page to make a secure online contribution.
  • Consider becoming a recurring donor to sustain their ongoing programs.
  • Explore opportunities for corporate sponsorship or workplace giving.
Every donation counts and helps Power Over PD continue its life-changing work.

Click the logo to donate!

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Get Involved
In addition to donating, you can engage with Power Over PD by:
  • Volunteering: Lend your time and talents to support events and programs.
  • Attending Events: Participate in workshops, educational seminars, and fundraising activities.
  • Spreading Awareness: Share their mission on social media or within your community.

Final Thoughts

Power Over PD stands as a beacon of hope for individuals living with Parkinson’s disease. By supporting their mission, you help empower countless lives and contribute to a world where everyone has the resources they need to thrive.
Visit Power Over PD today to learn more, access their services, and discover ways to get involved. Together, we can make a powerful difference.


Power over Parkinson's Links

Website: www.poweroverpd.org
Donate: www.poweroverpd.org/donations
YouTube: https://www.youtube.com/@poweroverpd
Instagram https://www.instagram.com/poweroverpd/

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7 things you need to do after a yopd diagnosis

2/1/2025

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What to Do Right After a Young Onset Parkinson’s Disease (YOPD) Diagnosis

Being diagnosed with Young Onset Parkinson’s Disease (YOPD)—which typically occurs before the age of 50—can be overwhelming. However, taking proactive steps early on can help you maintain a fulfilling, active, and independent life. Here’s what you should do next:

1. Educate Yourself on YOPD: Understanding YOPD will empower you to make informed decisions about your health and future. Unlike Parkinson’s diagnosed later in life, YOPD often progresses differently, with slower movement-related symptoms but a higher likelihood of dystonia (muscle cramps) and medication-related side effects.
  • Parkinson’s Foundation - Young Onset Parkinson’s Disease: A comprehensive overview of YOPD, symptoms, treatment, and research.
  • Davis Phinney Foundation - YOPD Resources: Offers guides, webinars, and inspirational stories.
  • Michael J. Fox Foundation - Guide to the Newly Diagnosed: Provides essential information for navigating a Parkinson’s diagnosis.

2. Find a Movement Disorder Specialist (MDS)
: A general neurologist may not have the expertise needed to manage YOPD effectively. A Movement Disorder Specialist (MDS) is a neurologist with additional training in Parkinson’s disease and related disorders.
  • Use the International Parkinson and Movement Disorder Society (MDS) Specialist Directory to locate a specialist near you.
  • The Parkinson’s Foundation Helpline (1-800-4PD-INFO) can also help you find an MDS in your area.

3. Connect with Others Who Have YOPD:
Joining a support group can help you feel less alone. There are many communities specifically for people with YOPD:
  • YOPD Facebook Support Group: A private group where members share advice, personal stories, and encouragement.
  • Twitchy Woman: A blog and community dedicated to women with Parkinson’s, including YOPD-focused content.
  • PD Avengers: A global advocacy group working to end Parkinson’s and support those living with the disease.

4. Start Exercising Immediately:
Exercise is one of the best ways to slow disease progression and improve symptoms. Research shows that people with YOPD who exercise regularly experience fewer movement issues and a better quality of life.
  • Power Over Parkinson's: Exercise is the only known therapeutic that can actually slow the progression of the Parkinson's Disease.
  • Rock Steady Boxing – A non-contact boxing program designed for people with Parkinson’s.
  • PD Warrior – A high-intensity exercise program designed for early-stage Parkinson’s.
  • Brian Grant Foundation Exercise Library – Features videos and exercise plans tailored for Parkinson’s.

5. Understand Your Treatment Options
: Your doctor will discuss treatment options, which may include:
  • Medication: Levodopa (Sinemet), dopamine agonists, MAO-B inhibitors, and more.
  • Lifestyle Adjustments: Diet, sleep, and stress management.
  • Surgical Options: Deep Brain Stimulation (DBS) may be an option later in the disease course.
For a deep dive into treatments, visit:
  • Michael J. Fox Foundation - Treatments & Medications
  • Parkinson’s Foundation - Medications

6. Plan for the Future:
While YOPD progresses slowly, planning ahead can provide peace of mind:
  • Work & Disability: Some people with YOPD continue working for years, while others may need to explore disability benefits. Learn more at Social Security Disability Benefits for Parkinson’s.
  • Financial Planning: Consider consulting a financial planner who understands chronic illnesses.
  • Legal Considerations: Establish a power of attorney and discuss long-term care options with loved ones.

7. Stay Informed & Get Involved:
Advocacy and participation in clinical trials can help drive research forward:
  • Fox Trial Finder – Find Parkinson’s clinical trials near you.
  • The Cure Parkinson’s Trust – Dedicated to funding research for a cure.
  • Parkinson’s Policy & Advocacy – Learn how to advocate for Parkinson’s funding and support.

Final Thoughts: A YOPD diagnosis changes your life, but it does not define you. By educating yourself, seeking expert care, staying active, and building a support network, you can continue to live a meaningful and independent life.

Click on the below image to read an article from Yale school of medicine

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Exercise Equipment to get strong

Kettlebells

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This concept will change how you perceive your journey

1/25/2025

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The Rule of Thirds, as introduced by Alexi Pappas, can be a powerful mindset for someone with Parkinson’s Disease to manage expectations, sustain motivation, and accept the emotional journey that comes with facing challenges. Remember that everyone's journey is different and has many ups and downs.  It is one of the reasons we like this concept. 
There are a number of apps that help you track mood and helps identify days/times/activities/engagements that affect your mood.  We'll talk more about them later, but here are the links for now: 
Moodistory  //  MoodNotes  //  eMoods

Here’s how the concept of the Rule of 1/3s applies:
 
1. One-Third of the Time You’ll Feel Good
What This Means:
  • These are days when symptoms are less pronounced, energy levels are higher, and mood is positive.
  • It's important to maximize these periods without overexerting or creating unrealistic expectations for yourself.
How to Approach Good Days:
  • Engage Fully: Use these moments to work on activities or goals that are more demanding, such as:
    • Physical therapy sessions or a longer and more intense exercise session.
    • Enjoying hobbies that bring fulfillment, like painting, gardening, or social outings.
  • Celebrate Your Wins: Reflect on what’s going well to build confidence and remind yourself that progress is possible.
  • Prepare for Other Days: Use the energy and motivation from good days to set yourself up for the tougher times. For instance:
    • Meal prep for easier cooking later.
    • Write down reminders or affirmations to read on harder days.
Mindset Tip:
  • Avoid the temptation to overdo it on good days. While it’s natural to want to "make up for lost time," overexertion can lead to burnout or fatigue.
Keep track of your activity:  Exercise Tracking Book
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2. One-Third of the Time You’ll Feel Okay
What This Means:
  • These days may feel neutral—neither great nor terrible. Symptoms might be noticeable but manageable, and energy levels are steady but not high.
  • These days are about maintaining momentum and finding satisfaction in steady progress.
How to Approach Okay Days:
  • Focus on Consistency: Engage in lighter or less intense versions of your usual routines:
    • A gentle yoga session or stretching instead of a full workout.
    • A short walk or indoor activities if weather or energy is a factor.
  • Practice Gratitude: Acknowledge that these are still functional days, even if they’re not as vibrant as the good ones.
  • Connect with Others: Okay days can be great for simple social activities, like phone calls, a visit from a friend, or attending a support group.
Mindset Tip:
  • Recognize that consistency, even in small actions, is key to progress. Embrace the idea that "doing something" is better than "doing nothing."



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3. One-Third of the Time You’ll Feel Crappy
What This Means:
  • Symptoms may be more intense, energy levels low, and emotions like frustration or sadness might surface.
  • These are natural and expected parts of living with Parkinson’s, not a sign of failure.
How to Approach Crappy Days:
  • Prioritize Rest: Allow yourself to rest and recover without guilt. Sometimes, the most productive thing you can do is give your body the time it needs.
  • Use Support Systems: Lean on friends, family, or caregivers for help. Sharing your feelings can lighten the emotional load.
  • Practice Mindfulness: Techniques like deep breathing, meditation, or progressive muscle relaxation can help manage stress or discomfort.
  • Be Kind to Yourself: Reframe negative self-talk. Instead of thinking, “I’m having a bad day,” remind yourself, “I’m having a challenging day, and that’s okay.”
Mindset Tip:
  • Keep in mind that these tough days are temporary. Knowing that they’re part of the process can help you be more compassionate with yourself.
Why This Framework Matters

1. Promotes Emotional Balance
The Rule of Thirds helps normalize the ups and downs of life with Parkinson’s. Instead of feeling defeated by difficult days, you can view them as part of a natural cycle.
2. Prevents Overwhelming Expectations
By understanding that feeling good 100% of the time is unrealistic, you can avoid putting undue pressure on yourself.
3. Builds Resilience
Knowing that tough days will pass encourages you to keep moving forward, even when things feel hard.
4. Encourages Forward Momentum
Good days inspire action, okay days sustain consistency, and tough days teach patience and self-care—all of which contribute to long-term progress.


Practical Examples for Daily Life
  • Physical Health:
    • Good days: Try a full workout or a challenging strength routine.
    • Okay days: Do light stretches or balance exercises.
    • Crappy days: Focus on rest, hydration, and gentle breathing and stretching  exercises.
  • Emotional Health:
    • Good days: Journal about what inspires you or your progress.
    • Okay days: Write down one thing you’re grateful for.
    • Crappy days: Read positive notes or affirmations from better days.
  • Social Health:
    • Good days: Plan an outing or host a small gathering.
    • Okay days: Make a phone call or respond to messages.
    • Crappy days: Enjoy passive interactions, like listening to a podcast or watching a favorite show.


Final Thought
The Rule of Thirds reminds you that life with Parkinson’s is a dynamic journey. By expecting and embracing a mix of good, okay, and crappy days, you can foster a sense of balance, maintain hope, and build a life that is both meaningful and resilient.

Do you know how to deadlift?  Check out this video:  Deadlifts
Want more?  Subscribe to our members section for a more detailed look at exercises, workout library and interviews.


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8 Steps for starting and exercise program with young Onset Parkinson's Disease

1/17/2025

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Starting a Progressive Exercise Program for Young-Onset Parkinson’s Disease
Living with young-onset Parkinson’s disease (YOPD) presents unique challenges, but exercise is one of the most effective tools to manage symptoms, improve mobility, and maintain independence. Here’s a detailed, step-by-step guide to getting started with a progressive exercise program.

Step 1: Consult a Physical Therapist
The first step is to work with a doctor of physical therapy (DPT) experienced in treating Parkinson’s disease. Therapists certified in LSVT-BIG, Rock Steady Boxing, or Parkinson Wellness Recovery (PWR!) programs specialize in interventions tailored to your needs. During your initial consultation, your PT will:
  • Perform a thorough evaluation of your strength, flexibility, balance, and gait.
  • Discuss your medical history, current symptoms, and goals.
  • Identify any movement patterns affected by bradykinesia, rigidity, or tremors.
  • Create a customized exercise plan to safely and effectively address your needs.
Tip: Bring a list of specific challenges or activities you’d like to improve (e.g., difficulty with stairs or stiffness in the morning).
American Physical Therapy Association   //  American Board of Physical Therapy Specialties //  Physical Therapist License Look Up

Step 2: Set Clear Goals
Setting goals helps keep you motivated and ensures your program is aligned with your priorities. Goals should be specific, measurable, and realistic. Examples include:
  • Walking 30 minutes without fatigue.
  • Improving your ability to get up from a chair independently.
  • Reducing episodes of freezing or shuffling gait.
  • Enhancing your posture and balance to prevent falls.
  • Lift heavy weights comfortably.
Tip: Reassess your goals regularly with your PT to track progress and adjust your plan as needed.
How To Build A Sustainable Exercise Program With Parkinson's Disease  // A WOD A Day Keeps the Doctor Away

Step 3: Focus on Key Components of Exercise
A successful program incorporates multiple types of exercise. Here’s what to include:
1. Aerobic Exercise
  • Why it’s important: Aerobic exercise improves cardiovascular health, reduces fatigue, and can enhance dopamine function in the brain.
  • What to do: Walk, cycle, swim, or dance at a moderate intensity. Use a treadmill or stationary bike if balance is a concern.
  • How often: Aim for 30-60 minutes, 3–5 days per week.
  • Intensity: Start with lower intensity routines and increase as able.  Consult your physical therapist on how to progress.
2. Strength Training
  • Why it’s important: Strengthening muscles helps counteract rigidity and promotes better posture.
  • What to do: Use bodyweight exercises, resistance bands, or light weights to start and progress to heavy dumbbells, kettlebells, and barbells as you can safely. Examples include squats, lunges, deadlifts, push-ups, and rows.
  • How often: Perform 2–3 sessions per week with 2–3 sets of 8–12 repetitions per exercise.
3. Flexibility and Stretching
  • Why it’s important: Stretching combats stiffness and improves range of motion.
  • What to do: Focus on areas like the neck, shoulders, back, hips, and hamstrings. Incorporate dynamic stretches before activity and static stretches after.
  • How often: Stretch daily, holding each stretch for 20–30 seconds.
4. Balance and Coordination
  • Why it’s important: Improves stability and reduces fall risk.
  • What to do: Practice exercises like standing on one leg, tandem walking, and tai chi. Add agility drills like stepping over objects or side-stepping.
  • How often: Include balance training 3–4 times per week.
5. High-Amplitude Movements (LSVT-BIG or PWR! Moves)
  • Why it’s important: These large, exaggerated movements counteract bradykinesia and improve motor control.
  • What to do: Perform specific LSVT-BIG exercises or incorporate PWR! Moves into your routine, emphasizing big, powerful gestures like arm swings and high steps.
  • How often: Practice daily for 10–15 minutes.
LSVT-BIG  //  PWR!  //  Rock Steady Boxing    //  Power Over Parkinson's 

Step 4: Build Gradually
When starting a new program, it’s essential to:
  • Begin with low intensity and gradually increase duration and difficulty.
  • Monitor how your body responds, and adjust based on fatigue, stiffness, or other symptoms.
  • Allow for adequate rest and recovery between sessions to prevent overtraining.
Tip: Use a symptom diary to track how exercise affects your energy levels, stiffness, and overall function.

Step 5: Incorporate Functional Training
Functional exercises mimic real-life movements and improve your ability to perform daily tasks. Examples include:
  • Practicing sit-to-stand transitions to strengthen your legs and improve independence.
  • Walking over small objects or through doorways to reduce freezing episodes.
  • Carrying light objects while walking to enhance coordination.
Gym Equipment:  Kettlebells  //  Dumbbells  //  Exercise Bands

Step 6: Stay Consistent and Track Progress
Consistency is key to reaping the long-term benefits of exercise. Use a journal, app, or wearable device to:
  • Track your workouts, including exercises, duration, and intensity.
  • Note improvements in symptoms or daily activities.
  • Share progress with your PT for program adjustments.
Tip: Celebrate small victories to stay motivated, whether it’s walking farther, feeling less stiff, or tackling a new exercise.

Step 7: Seek Community and Support
Engaging with others can make exercise more enjoyable and help you stay accountable. Consider:
  • Joining a local Parkinson’s exercise group or gym class.
  • Participating in online communities or virtual exercise sessions.
  • Enlisting a workout buddy or family member to join your routine.
National Parkinson's Foundation
American Parkinson's Disease Association


Step 8: Partner with a Specialist
Your needs may change over time, so regular check-ins with a PT who understands Parkinson’s are essential. They can:
  • Modify your program as symptoms evolve.
  • Provide strategies to overcome new challenges.
  • Offer motivation and guidance to keep you on track.

Disclaimer
This guide is for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider or a licensed physical therapist before starting a new exercise program to ensure it’s safe and appropriate for your specific condition.

Exercise is a powerful tool for managing Parkinson’s disease. By starting a progressive, well-rounded program, you’re taking an active role in your health and well-being. Remember, persistence and patience are your allies on this journey. 

Check out our previous blog posts for more information and content.  You can also follow our social media accounts for more!


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Top 5 Essential Gadgets and Gear for Staying Active with Parkinson’s Disease

1/10/2025

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Top 5 Essential Gadgets and Gear for Staying Active with Parkinson’s Disease

Living with Parkinson’s Disease doesn’t mean you have to sideline your fitness goals. In fact, staying active is one of the most powerful tools in managing symptoms and improving your quality of life. But to keep up with a consistent exercise routine, having the right gear can make all the difference. We understand that some people prefer going to a gym, but having things at home make it easier when you don't have the motivation or energy to get to the gym.  Here’s a breakdown of the top five items every person with Parkinson’s should consider and how they support your fitness journey.

1. Good Shoes
Why You Need Them: Proper footwear provides the foundation for safe and effective exercise. For people with Parkinson’s, balance and gait can be a challenge, making supportive and comfortable shoes non-negotiable.
How They Help:
  • Reduce the risk of falls with slip-resistant soles.
  • Improve posture and alignment during activities like walking or strength training.
  • Provide cushioning to reduce joint stress during high-impact exercises.
What to Look For: Choose shoes with good arch support, a wide toe box for stability, and a secure fit to prevent tripping. Brands that specialize in orthopedic or athletic footwear are great options.  There are also shoes that “hands free” that could be very useful (see Yari and Kita).
Check out a variety of options here:  Altra, Topo, Lems, Yari, Kita, Dakota, Ridgewood, Excursion,

2. Fitness Tracker
Why You Need It: Tracking your activity levels helps you stay motivated and monitor progress, which is especially important for managing Parkinson’s symptoms.
How They Help:
  • Track steps, heart rate, and calories burned to maintain accountability.
  • Set reminders to stay active throughout the day.
  • Monitor sleep patterns, which are critical for symptom management.
Pro Tip: Look for fitness trackers with easy-to-read screens and vibration alerts, which are helpful if tremors make fine motor skills more challenging.
Check out a variety of options here: Wahoo, Garmin, Coros, Fitbit, Apple Watch, Google Pixel Watch 3, Samsung, Oura Ring, Whoop,

3. Free Weights
Why You Need Them: Strength training is a vital component of any exercise routine for Parkinson’s. Free weights, like dumbbells, offer versatility and scalability as you build strength.
How They Help:
  • Improve muscle tone and combat muscle stiffness.
  • Enhance motor control and reduce tremors through repetitive movements.
  • Support better posture and reduce the risk of injury by strengthening stabilizing muscles.
Getting Started: Start with lighter weights (1-5 pounds) and focus on controlled movements. Gradually increase resistance as you grow stronger.  We like the “all-in-one” weights like the PowerBlocks.  They are expensive up front, but are basically an entire dumbbell set in one and cheaper in the long run.
Check these out:  PowerBlocks, Adjustable Dumbbells, Jfit Dumbbells, Adjustable Kettlebell, Rogue Fitness,

4. Resistance Bands
Why You Need Them: Resistance bands are a low-impact, portable option for building strength and flexibility—perfect for home workouts or when you’re on the go.
How They Help:
  • Provide adjustable resistance for customized workouts.
  • Improve range of motion and joint stability.
  • Are lightweight and easy to use, even for beginners.
Bonus: Many bands come in color-coded resistance levels, making it easy to track your progress as you advance.
Check these out:  Felt loops, Heavy resistance bands, Bands with handles,

5. Exercise Mat
Why You Need It: A supportive exercise mat makes floor-based exercises and stretches more comfortable, encouraging regular practice.
How They Help:
  • Provide cushioning to protect joints during exercises like yoga, Pilates, or core work.
  • Prevent slips and falls with non-slip surfaces.
  • Create a dedicated space for your workouts, reinforcing consistency.
Tips for Choosing: Look for a mat with adequate thickness (around ¼ inch) for comfort and a textured surface for grip. Mats labeled as "extra thick" or "anti-slip" are ideal.
Equipment:  Yoga mat, large mat, Gymnastics Mat,

Conclusion
Having the right tools can transform your exercise routine, making it more effective and enjoyable. Good shoes keep you steady on your feet, a fitness tracker keeps you motivated, and free weights and resistance bands help build strength and flexibility. Don’t forget a quality exercise mat to ensure comfort and safety during floor workouts.
By investing in these essential pieces of gear, you’re equipping yourself for success on your journey to living actively with Parkinson’s Disease. Remember, staying consistent with your exercise routine is key—and the right equipment can make all the difference.

Bonus Suggestion:
  Get a jump rope!  Jump Rope (light), Jump Rope (weighted).

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    The blog is all about providing useful information for people, their caregivers, and/or friends.  This is not intended or implied to be a substitute for professional medical advice, diagnosis, or treatment.  It is a series of generic recommendations, not for any specific individual. Please consult with your own health care professional before starting exercise.

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