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8 Steps for starting and exercise program with young Onset Parkinson's Disease

1/17/2025

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Starting a Progressive Exercise Program for Young-Onset Parkinson’s Disease
Living with young-onset Parkinson’s disease (YOPD) presents unique challenges, but exercise is one of the most effective tools to manage symptoms, improve mobility, and maintain independence. Here’s a detailed, step-by-step guide to getting started with a progressive exercise program.

Step 1: Consult a Physical Therapist
The first step is to work with a doctor of physical therapy (DPT) experienced in treating Parkinson’s disease. Therapists certified in LSVT-BIG, Rock Steady Boxing, or Parkinson Wellness Recovery (PWR!) programs specialize in interventions tailored to your needs. During your initial consultation, your PT will:
  • Perform a thorough evaluation of your strength, flexibility, balance, and gait.
  • Discuss your medical history, current symptoms, and goals.
  • Identify any movement patterns affected by bradykinesia, rigidity, or tremors.
  • Create a customized exercise plan to safely and effectively address your needs.
Tip: Bring a list of specific challenges or activities you’d like to improve (e.g., difficulty with stairs or stiffness in the morning).
American Physical Therapy Association   //  American Board of Physical Therapy Specialties //  Physical Therapist License Look Up

Step 2: Set Clear Goals
Setting goals helps keep you motivated and ensures your program is aligned with your priorities. Goals should be specific, measurable, and realistic. Examples include:
  • Walking 30 minutes without fatigue.
  • Improving your ability to get up from a chair independently.
  • Reducing episodes of freezing or shuffling gait.
  • Enhancing your posture and balance to prevent falls.
  • Lift heavy weights comfortably.
Tip: Reassess your goals regularly with your PT to track progress and adjust your plan as needed.
How To Build A Sustainable Exercise Program With Parkinson's Disease  // A WOD A Day Keeps the Doctor Away

Step 3: Focus on Key Components of Exercise
A successful program incorporates multiple types of exercise. Here’s what to include:
1. Aerobic Exercise
  • Why it’s important: Aerobic exercise improves cardiovascular health, reduces fatigue, and can enhance dopamine function in the brain.
  • What to do: Walk, cycle, swim, or dance at a moderate intensity. Use a treadmill or stationary bike if balance is a concern.
  • How often: Aim for 30-60 minutes, 3–5 days per week.
  • Intensity: Start with lower intensity routines and increase as able.  Consult your physical therapist on how to progress.
2. Strength Training
  • Why it’s important: Strengthening muscles helps counteract rigidity and promotes better posture.
  • What to do: Use bodyweight exercises, resistance bands, or light weights to start and progress to heavy dumbbells, kettlebells, and barbells as you can safely. Examples include squats, lunges, deadlifts, push-ups, and rows.
  • How often: Perform 2–3 sessions per week with 2–3 sets of 8–12 repetitions per exercise.
3. Flexibility and Stretching
  • Why it’s important: Stretching combats stiffness and improves range of motion.
  • What to do: Focus on areas like the neck, shoulders, back, hips, and hamstrings. Incorporate dynamic stretches before activity and static stretches after.
  • How often: Stretch daily, holding each stretch for 20–30 seconds.
4. Balance and Coordination
  • Why it’s important: Improves stability and reduces fall risk.
  • What to do: Practice exercises like standing on one leg, tandem walking, and tai chi. Add agility drills like stepping over objects or side-stepping.
  • How often: Include balance training 3–4 times per week.
5. High-Amplitude Movements (LSVT-BIG or PWR! Moves)
  • Why it’s important: These large, exaggerated movements counteract bradykinesia and improve motor control.
  • What to do: Perform specific LSVT-BIG exercises or incorporate PWR! Moves into your routine, emphasizing big, powerful gestures like arm swings and high steps.
  • How often: Practice daily for 10–15 minutes.
LSVT-BIG  //  PWR!  //  Rock Steady Boxing    //  Power Over Parkinson's 

Step 4: Build Gradually
When starting a new program, it’s essential to:
  • Begin with low intensity and gradually increase duration and difficulty.
  • Monitor how your body responds, and adjust based on fatigue, stiffness, or other symptoms.
  • Allow for adequate rest and recovery between sessions to prevent overtraining.
Tip: Use a symptom diary to track how exercise affects your energy levels, stiffness, and overall function.

Step 5: Incorporate Functional Training
Functional exercises mimic real-life movements and improve your ability to perform daily tasks. Examples include:
  • Practicing sit-to-stand transitions to strengthen your legs and improve independence.
  • Walking over small objects or through doorways to reduce freezing episodes.
  • Carrying light objects while walking to enhance coordination.
Gym Equipment:  Kettlebells  //  Dumbbells  //  Exercise Bands

Step 6: Stay Consistent and Track Progress
Consistency is key to reaping the long-term benefits of exercise. Use a journal, app, or wearable device to:
  • Track your workouts, including exercises, duration, and intensity.
  • Note improvements in symptoms or daily activities.
  • Share progress with your PT for program adjustments.
Tip: Celebrate small victories to stay motivated, whether it’s walking farther, feeling less stiff, or tackling a new exercise.

Step 7: Seek Community and Support
Engaging with others can make exercise more enjoyable and help you stay accountable. Consider:
  • Joining a local Parkinson’s exercise group or gym class.
  • Participating in online communities or virtual exercise sessions.
  • Enlisting a workout buddy or family member to join your routine.
National Parkinson's Foundation
American Parkinson's Disease Association


Step 8: Partner with a Specialist
Your needs may change over time, so regular check-ins with a PT who understands Parkinson’s are essential. They can:
  • Modify your program as symptoms evolve.
  • Provide strategies to overcome new challenges.
  • Offer motivation and guidance to keep you on track.

Disclaimer
This guide is for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider or a licensed physical therapist before starting a new exercise program to ensure it’s safe and appropriate for your specific condition.

Exercise is a powerful tool for managing Parkinson’s disease. By starting a progressive, well-rounded program, you’re taking an active role in your health and well-being. Remember, persistence and patience are your allies on this journey. 

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    The blog is all about providing useful information for people, their caregivers, and/or friends.  This is not intended or implied to be a substitute for professional medical advice, diagnosis, or treatment.  It is a series of generic recommendations, not for any specific individual. Please consult with your own health care professional before starting exercise.

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